Dashboard for Clinicians
Find a summary of the records added by you and your colleagues in your centre upon login to the Core Registry. This dashboard also includes information on your patients' preferences.
Patient Reported Outcomes
Patient Reported Outcome Measures (PROMs) are available to be completed by the patient and the clinician. Measures such as EQ-5D have been added in several languages. The Brief Pain Inventory Short Form will be available soon.
Which other PROMs should be added to the registries? EuRRECa and EuRR-Bone have launched a survey for patients and health care providers to help answer this question. Participate before February 21st.
Patient survey
Health Care Provider survey
Condition Specific Modules
Active
Thyroid - To find out more please contact Edward Visser at w.e.visser@erasmusmc.nl
PHP/iPPSD - To find out more please contact Alex Ertl at diana-alexandra.ertl@meduniwien.ac.at
Pituitary Tumour - To find out more please contact Ana Priego at A.L.Priego_Zurita@lumc.nl
In Development
Rare Obesity module - To find out more please contact Erica van den Akker at e.l.t.vandenakker@erasmusmc.nl
Rare Hypophosphataemia, Osteogenesis Imperfecta, Achondroplasia and FD/MAS - To find out more please contact the EuRR-Bone Coordinator n.m.appelman-dijkstra@lumc.nl
If you would like to develop a condition specific module, please contact A.L.Priego_Zurita@lumc.nl
Activity Report Further details of the activity of the Core Registry are available at eurreca.net/reports/
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